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End of life care Resources

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A multidisciplinary training program for spiritual care in palliative care

Primary Author: Palliative Care Australia

Complete curriculum materials for trainers including, instructor's guide, slide presentations, videos, vignettes, and handouts.

Requires registration with a free account to access.

Date Last Modified 12/31/2007 Course curriculum

A National Framework and Preferred Practices for Palliative and Hospice Care Quality

Primary Author: The National Quality Forum

This report details a framework for palliative and hospice care, intended to serve as a foundation for a quality measurement and reporting system. The report also discusses a set of preferred practices to improve palliative and hospice care.

Spiritual, Religious, and Existential Aspects of Care comprise the 5th domain of palliative and hospice care in this report.

The Executive Summary is available for free download from the page. The full report is free to NQF members and costs $29.99 for non-members.

Date Last Modified 12/01/2006 Report/Document/Book chapter

Nothing Left Unsaid: Creating a Healing Legacy with Final Words and Letters

Primary Author: Mary Polce-Lynch, Randolph-Macon College

Rituals exist to settle estates and bequeath material possessions after people die, but there isn't a ritual for making sure that nothing is left unsaid to loved ones. Messages of love, forgiveness, life lessons, hopes, and personal legacy can prevent regret during the grieving process and bring meaning to life in the present.

This resource assists people in writing two types of personal legacies: 1) Final Words written to loved ones before a person's death, and; 2) Legacy Letters written to loved ones approaching the end of their life due to age, illness, or going into harm's way. Both rituals create a different kind of inheritance to ensure that nothing is left unsaid.

Date Last Modified 10/10/2009 Exercise, Manual/guide

Palliative Care for Muslim Patients

Primary Author: Mohammad Zafir al-Shahri, King Faisal Specialist Hospital and Research Center

This article from the Journal of Supportive Oncology (Volume 3, Number 6) includes the following topics:

- The meaning of suffering in Islam
- Islam and medical ethics
- Cleanliness
- Modesty
- Dietary considerations
- Longevity of a terminally ill patient
- Religious practices around death

NOTE: To access this article you will need to sign-up for subscription. Subscriptions are free of charge to to US-based oncology professionals at www.supportiveoncology.net

Date Last Modified 11/01/2005 Article

Palliative Care Perspectives: Chapter 7: Psychosocial and Spiritual Aspects of Care

Primary Author: James L. Hallenbeck, Stanford University and VA Palo Alto Health Care System

This is chapter 7 of the book Palliative Care Perspectives, published by Oxford University Press. This chapter covers spirituality in relation to palliative care, the FICA spiritual assessment tool, depression, anxiety, grief, and bereavement, among other topics.

Date Last Modified 06/01/2003 Report/Document/Book chapter