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End of life care Resources

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Handbook for Mortals Primary Author: Joanne Lynn, Center to Improve Care of the Dying The complete text to the Handbook for Mortals: Guidance for People Facing Serious Illness, an authoritative consumer guide to end-of-life care. This book includes chapters on Finding Meaning, Talking with your Doctor, Advance Care Planning, and Enduring Grief and Loss. Date Last Modified 12/31/2006 Report/Document/Book chapter, Website
Health Care Guideline: Palliative Care Primary Author: ICSI: Institute for Clinical Systems Improvement Guideline to "assist primary and specialty care providers in identifying and caring for adult patients with a potentially life-limiting, life-threatening or chronic, progressive illness who may benefit from palliative care." Includes guidelines for the spiritual, religious and existential aspects of care. Date Last Modified 05/01/2008 Clinical practice guidelines
The HeART of Empathy: Using the Visual Arts in Medical Education Primary Author: Florence Gelo, Drexel University College of Medicine The Heart of Empathy video, and its accompanying Facilitator's Guide, captures Dr. Gelo's technique of using the visual arts to teach medical students and residents how to emotionally prepare for and deal with their patients' suffering and dying. As medical students and residents view the suffering portrayed in the paintings, the facilitator helps them to articulate and recognize their emotional reactions. Through focused observation and expression of feelings in a non-judgmental humanistic setting, students may cultivate the ability to acknowledge and address the emotional lives of their patients. Inspired by her experience as a Philadelphia Museum of Art tour guide, Dr. Gelo began to notice the emotional impact of paintings on the viewer, and imagined their use as a powerful teaching resource in medical education. For five years, Dr. Gelo has introduced small groups of Drexel University College of Medicine students and residents to the Philadelphia Museum of Art, where they view and discuss paintings that depict death and dying. This unique experience has been captured in The Heart of Empathy. The accompanying Facilitator's guide includes program models, resources and suggestions for classroom use. Date Last Modified 11/01/2008 Video, Faculty Development materials, Manual/guide
Improving Care for the End of Life: A Sourcebook for Health Care Managers and Clinicians Primary Author: Joanne Lynn, Center to Improve Care of the Dying Improving Care for the End of Life is a comprehensive guide to quality improvement for end of life care within health care systems, written for health care managers and clinicians. Section 6.0 covers Relationships, Spirituality, and Bereavement and includes a case study. Date Last Modified 10/05/2000 Report/Document/Book chapter, Website
Information needs at the end of life: a content analysis of one person's story Primary Author: Lynda M. Baker, Wayne State University Article from the Journal of the Medical Library Association (volume 92, issue 1) describing the nature of nature of information needed at the end of life. Four categories of needs were identified, including physical, emotional, spiritual, and financial, and information needs germane to each category were identified. Date Last Modified 01/01/2004 Article