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Palliative care Resources

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Improving Care for the End of Life: A Sourcebook for Health Care Managers and Clinicians

Primary Author: Joanne Lynn, Center to Improve Care of the Dying

Improving Care for the End of Life is a comprehensive guide to quality improvement for end of life care within health care systems, written for health care managers and clinicians. Section 6.0 covers Relationships, Spirituality, and Bereavement and includes a case study.

Date Last Modified 10/05/2000 Report/Document/Book chapter, Website

Improving the Quality of Spiritual Care as a Dimension of Palliative Care: The Report of the Consensus Conference

Primary Author: Christina M. Puchalski, GWish: The George Washington Institute for Spirituality and Health

A Consensus Conference sponsored by the Archstone Foundation of Long Beach, California, was held February 17-18, 2009, in Pasadena, California. The Conference was based on the belief that spiritual care is a fundamental component of quality palliative care. This document and the conference recommendations it includes builds upon prior literature, the National Consensus Project Guidelines, and the National Quality Forum Preferred Practices and Conference proceedings.

This was published in the October 2009 issue of the Journal of Palliative Medicine (JPM).

Date Last Modified 10/01/2009 Article, Clinical practice guidelines

IPPC Curriculum: Responding to Suffering and Bereavement

Primary Author: IPPC: The Initiative for Pediatric Palliative Care

Part of a complete curriculum for health care practitioners working in pediatric palliative care, this module "aims to enhance the ability of health care professionals to recognize, validate and respond to suffering in children, parents, and family members." A facilitator's guide, slide presentations, and activities are included, with an order form for videos.

Date Last Modified 12/31/2003 Course curriculum

A Lion in the House DVD Modules for Health Care Education

Primary Author: A Lion in the House, Community Media Productions, Inc.

A compelling set of teaching modules is available from the Emmy Award-winning documentary about children with cancer, A LION IN THE HOUSE. Based on real-life case studies, where things do not always go so well, the stories offer a forum to consider and discuss approaches to helping families navigate life and death issues related to cancer.

The Case Studies in Spirituality and Childhood Cancer Module offers specific, complicated case studies around issues of spirituality during a pediatric medical crisis. The Institute of Medicine defines pediatric palliative care to include the spiritual needs of a family, with a broad view of spirituality as the search for meaning and purpose in life and in death. Many families rely on spiritual resources in times of health-related crises, especially at end-of-life. Yet the majority of medical caregivers do not address issues of spirituality with their patients, with many feeling ill-equipped to do so. This module offers the insight of several veteran pediatric oncologists around spirituality issues.

-Each DVD module contains mini movies shot over a course of six years, competencies & objectives, discussion questions, a recommended resource list, and a PowerPoint presentation.

Date Last Modified 04/01/2010 Video, Case example/study, Clinical practice guidelines, Course curriculum, Website

A multidisciplinary training program for spiritual care in palliative care

Primary Author: Palliative Care Australia

Complete curriculum materials for trainers including, instructor's guide, slide presentations, videos, vignettes, and handouts.

Requires registration with a free account to access.

Date Last Modified 12/31/2007 Course curriculum