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Palliative care Resources

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The Essential Elements of Spirituality in the End-of-Life Care Primary Author: Katrina M. Scott, MDiv, BCC, Massachusetts General Hospital The National Consensus Projects Clinical Practice Guidelines for Quality Palliative Care, published in 2004, defines eight domains of care essential to palliative care clinical practice. The National Quality Forums 2006 document, A National Framework and Preferred Practices for Palliative and Hospice Care Quality: A Consensus Report, which is based on the Guidelines, identifies 38 evidence-based preferred practices for palliative care. This article demonstrates how the Guidelines and Preferred Practices may be operationalized in practice, focusing specifically on Domain 5 of the Guidelines, Spiritual, Religious and Existential Aspects of Care, which incorporates many pertinent aspects of hospice and palliative care related to addressing the spiritual needs of the dying patient and his or her family. In particular, the article addresses methods for assessing the need for spiritual care; methods for communicating with the patient and family about the need for spiritual care; the role of the spiritual adviser on the interdisciplinary palliative care team; the advantages of including certified chaplains on the palliative team; the need for sensitivity toward culture and religious diversity in administering spiritual care; the need for specialized palliative care spiritual advisors to build relationships with community clergy; and more. Date Last Modified 09/01/2008 Article, Clinical practice guidelines

An Exploratory Study of Spiritual Care at the End of Life Primary Author: Timothy P. Daaleman, University of North Carolina at Chapel Hill Article from the Annals of Family Medicine describing a qualitative research study into how spiritual care is perceived and delivered at the end of life. The authors concluded that "Clinicians and other health care workers consider spiritual care at the end of life as a series of highly fluid interpersonal processes ... rather than a set of prescribed and proscribed roles". Date Last Modified 09/01/2008 Article

Health Care Guideline: Palliative Care Primary Author: ICSI: Institute for Clinical Systems Improvement Guideline to "assist primary and specialty care providers in identifying and caring for adult patients with a potentially life-limiting, life-threatening or chronic, progressive illness who may benefit from palliative care." Includes guidelines for the spiritual, religious and existential aspects of care. Date Last Modified 05/01/2008 Clinical practice guidelines

The HeART of Empathy: Using the Visual Arts in Medical Education Primary Author: Florence Gelo, Drexel University College of Medicine The Heart of Empathy video, and its accompanying Facilitator's Guide, captures Dr. Gelo's technique of using the visual arts to teach medical students and residents how to emotionally prepare for and deal with their patients' suffering and dying. As medical students and residents view the suffering portrayed in the paintings, the facilitator helps them to articulate and recognize their emotional reactions. Through focused observation and expression of feelings in a non-judgmental humanistic setting, students may cultivate the ability to acknowledge and address the emotional lives of their patients. Inspired by her experience as a Philadelphia Museum of Art tour guide, Dr. Gelo began to notice the emotional impact of paintings on the viewer, and imagined their use as a powerful teaching resource in medical education. For five years, Dr. Gelo has introduced small groups of Drexel University College of Medicine students and residents to the Philadelphia Museum of Art, where they view and discuss paintings that depict death and dying. This unique experience has been captured in The Heart of Empathy. The accompanying Facilitator's guide includes program models, resources and suggestions for classroom use. Date Last Modified 11/01/2008 Video, Faculty Development materials, Manual/guide

Hospice Chaplains Take Up Bedside Counseling Primary Author: Paul Vitello, New York Times New York Times article from October 2008 covering the growth in hospice chaplaincy services in recent years. Discusses what hospice chaplains do and how the field has changed. Date Last Modified 10/28/2008 Article