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Palliative care Resources

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ChiPPS Pediatric Palliative Care Newsletter Issue #11: Spirituality and Pediatric Palliative Care

Primary Author: National Hospice & Palliative Care Organization (NHPCO)

This issue of the Children's Project on Palliative/Hospice Services (ChiPPS) Pediatric Palliative Care Newsletter focuses on Spirituality and Pediatric Palliative Care.

Articles include:

- Faith & Family: Religious Rituals when a Baby or Child is Dying by Ann Fitzsimons
- The Spirituality of Compassionate Presence by Mark Power, BCC
- Faith Communities: A Hand of Mercy by Randy Johnson, M.Div.
- Assessing Cultural and Religious Diversity in Pediatric Palliative Care by Rev. Paula J. Teague, D.Min., BCC, ACPE, CPE Supervisor

Date Last Modified 05/01/2008 Report/Document/Book chapter, Article

Clearing Your Grief and Bereavement

Primary Author: Daniel J Benor, MD, International Journal of Healing and Caring

Grief and bereavement are among the most challenging experiences each ofus has to face at one time or another in our life. If you come away from this book with only one message, I hope you come to understand that you can be gentle with yourself as you move through the complex stages of grieving.

With better understanding of the grief process, and learning the tools and skills you will learn in this WHEE BOOK, you will find you are able to markedly lessen your pain and suffering, or those of people under your care, as you move through the grief process.

WHEE: Whole Health - Easily and Effectively
AKA Wholistic Hybrid derived from EMDR and EFT

WHEE is a self-treatment method that is extremely simple to learn and to use, yet very rapidly and deeply effective. Within minutes it can reduce physical and psychological pains, even when these have been present for decades.

WHEE is completely individualized to the preferences and needs of those who use it. No part of WHEE is a requirement. Every aspect of WHEE is but a suggestion - for people to explore and use, as and if it feels right and comfortable to do so.

WHEE addresses spirit, relationships (with other people and the rest of the world), mind, emotions and body (as matter and energy). See discussion on the relationships between each of these and all the others at
http://www.wholistichealingresearch.com/srmeb.html

Date Last Modified 06/01/2010 Case example/study, Continuing Education course, Measure/Rating scale, PBL materials

Clinical Practice Guidelines for Quality Palliative Care, Second Edition

Primary Author: National Consensus Project for Quality Palliative Care

Developed by a consortium of organizations, the Clinical Practice Guidelines for Quality Palliative Care apply to specialist-level palliative care (e.g., palliative care teams) delivered in a wide range of treatment settings and to the work of providers in primary treatment settings where palliative approaches to care are integrated into daily clinical practice. Domain 5 of the guidelines covers Spiritual, Religious and Existential Aspects of Care.

Date Last Modified 01/01/2009 Clinical practice guidelines, Report/Document/Book chapter

Closure

Primary Author: Jonathan Weinkle, Jewish Healthcare Foundation

Closure is an initiative to change expectations for end-of-life. Our goal is to empower consumers and healthcare professionals with easy-to-access, simple-to-understand information and resources to make educated decisions about end-of-life care. The Closure website includes blogs, listings of resources, news items, and the Closure 101 curriculum.
Closure 101 is a curriculum of educational lessons dealing with an array of complex end-of-life issues including prognosis, advance planning, medical decision making, and hospice and palliative care. These difficult concepts are explained in a way that is designed to make sense to consumers. The curriculum contains 12 easy-to-follow lessons that can be viewed online or used by health educators to teach in-person. In addition to the lessons, the site contains questionnaires and information sheets that can help guide a person through the decision-making process. Guidelines for creating a Closure 101 program are available on the site.

Date Last Modified 04/04/2011 Website, Article, Continuing Education course, Course curriculum, Manual/guide

Enhancing Meaning, Hope, and Dignity Near the End of Life

Primary Author: Innovations in End-of-Life Care

The November-December 2002 issue (Vol. 4, No. 6) of the journal Innovations in End-of-Life Care covered the theme of Enhancing Meaning, Hope, and Dignity Near the End of Life. It includes articles by and about Harvey Max Chochinov, William Breitbart, Zbigniew Zylicz, and Janice Mulder.

Date Last Modified 11/01/2002 Article