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End of life care Resources

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ChiPPS Pediatric Palliative Care Newsletter Issue #10: Spirituality and Pediatric Palliative Care

Primary Author: National Hospice & Palliative Care Organization (NHPCO)

This issue of the Children's Project on Palliative/Hospice Services (ChiPPS) Pediatric Palliative Care Newsletter focuses on Spirituality and Pediatric Palliative Care.

Articles include:

- Struggles with God by Lisa Buell
- The Importance of Meaning-Making: Where Spirituality and Grief Intersect by Elizabeth A. Keene Reder, MA, CT
- Spiritual Care of Children with Life-Limiting Illness by Paul Thayer, DMin
- When a Child Dies: Spiritual Struggles and Solace by Beth Seyda

Date Last Modified 02/01/2008 Report/Document/Book chapter, Article

ChiPPS Pediatric Palliative Care Newsletter Issue #11: Spirituality and Pediatric Palliative Care

Primary Author: National Hospice & Palliative Care Organization (NHPCO)

This issue of the Children's Project on Palliative/Hospice Services (ChiPPS) Pediatric Palliative Care Newsletter focuses on Spirituality and Pediatric Palliative Care.

Articles include:

- Faith & Family: Religious Rituals when a Baby or Child is Dying by Ann Fitzsimons
- The Spirituality of Compassionate Presence by Mark Power, BCC
- Faith Communities: A Hand of Mercy by Randy Johnson, M.Div.
- Assessing Cultural and Religious Diversity in Pediatric Palliative Care by Rev. Paula J. Teague, D.Min., BCC, ACPE, CPE Supervisor

Date Last Modified 05/01/2008 Report/Document/Book chapter, Article

End of Life: Helping With Comfort and Care

Primary Author: National Institute on Aging

This booklet "provides an overview of issues commonly facing people caring for someone nearing the end of life. It can help you work with health care providers to complement their medical and caregiving efforts."

Date Last Modified 02/14/2008 Report/Document/Book chapter

Handbook for Mortals

Primary Author: Joanne Lynn, Center to Improve Care of the Dying

The complete text to the Handbook for Mortals: Guidance for People Facing Serious Illness, an authoritative consumer guide to end-of-life care. This book includes chapters on Finding Meaning, Talking with your Doctor, Advance Care Planning, and Enduring Grief and Loss.

Date Last Modified 12/31/2006 Report/Document/Book chapter, Website

A National Framework and Preferred Practices for Palliative and Hospice Care Quality

Primary Author: The National Quality Forum

This report details a framework for palliative and hospice care, intended to serve as a foundation for a quality measurement and reporting system. The report also discusses a set of preferred practices to improve palliative and hospice care.

Spiritual, Religious, and Existential Aspects of Care comprise the 5th domain of palliative and hospice care in this report.

The Executive Summary is available for free download from the page. The full report is free to NQF members and costs $29.99 for non-members.

Date Last Modified 12/01/2006 Report/Document/Book chapter