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End of life care Resources

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Nothing Left Unsaid: Creating a Healing Legacy with Final Words and Letters Primary Author: Mary Polce-Lynch, Randolph-Macon College Rituals exist to settle estates and bequeath material possessions after people die, but there isn't a ritual for making sure that nothing is left unsaid to loved ones. Messages of love, forgiveness, life lessons, hopes, and personal legacy can prevent regret during the grieving process and bring meaning to life in the present. This resource assists people in writing two types of personal legacies: 1) Final Words written to loved ones before a person's death, and; 2) Legacy Letters written to loved ones approaching the end of their life due to age, illness, or going into harm's way. Both rituals create a different kind of inheritance to ensure that nothing is left unsaid. Date Last Modified 10/10/2009 Exercise, Manual/guide
The Unbroken Circle: A Toolkit for Congregations Around Illness, End of Life, and Grief Primary Author: James L Brooks, Duke University The Unbroken Circle: A Toolkit for Congregations Around Illness, End of Life, and Grief is a new resource filled with practical tools and guidance to help congregations care for people facing illness, dying and bereavement. Developed by the Duke Institute on Care at the End of Life and written by Rev. James L. Brooks, it provides clergy, lay leaders, parish nurses and chaplains with an inspiring vision, easy-to-use tools, specific tips, and hundreds of additional resources. The Toolkit starts with a call to action and provides templates for congregations to plan a discussion of these issues. It also includes guidelines for support groups, information on how to offer spiritual support to families, and outlines for educational programs and liturgical services. The Toolkit is designed to be in sync with the self-organization of congregations, including organizing illness, death, and grief information specifically geared towards adult and child education, congregational care, and worship, facility, and clergy leadership. Published in the summer of 2009, The Unbroken Circle has been embraced by congregationally-based clergy and nurses, chaplains in health care settings, educators in seminaries and clinical pastoral education programs, and students interested in spiritual dimensions of caring for those with advanced illness. Date Last Modified 03/31/2009 Manual/guide, Book, On-the-job tool
Spiritual Care & Emotional Support in Healthcare: Physician's Manual Primary Author: Mark Reeves, UCSD Medical Center This physician manual, created by a winner of the GWish Spirituality and Medicine Curricular and Residency Training Program Award, contains much information specific to the UCSD Medical Center but can serve as a model for others. Date Last Modified 12/31/2008 Manual/guide
Palliative Care Perspectives: Chapter 7: Psychosocial and Spiritual Aspects of Care Primary Author: James L. Hallenbeck, Stanford University and VA Palo Alto Health Care System This is chapter 7 of the book Palliative Care Perspectives, published by Oxford University Press. This chapter covers spirituality in relation to palliative care, the FICA spiritual assessment tool, depression, anxiety, grief, and bereavement, among other topics. Date Last Modified 06/01/2003 Report/Document/Book chapter
Improving Care for the End of Life: A Sourcebook for Health Care Managers and Clinicians Primary Author: Joanne Lynn, Center to Improve Care of the Dying Improving Care for the End of Life is a comprehensive guide to quality improvement for end of life care within health care systems, written for health care managers and clinicians. Section 6.0 covers Relationships, Spirituality, and Bereavement and includes a case study. Date Last Modified 10/05/2000 Report/Document/Book chapter, Website