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End of life care Resources

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Preferred Practices from the National Quality Forum (NQF) Consensus Report

Primary Author: The Center to Advance Palliative Care (CAPC)

A 3-page document listing all of the preferred practices from the National Quality Forum (NQF) Consensus Report: Preferred Practices for Palliative and Hospice Care Quality. The Center to Advance Palliative Care created and distributed this document courtesy of the National Consensus Project. Spiritual assessment and spiritual care services are included in the preferred practices.

Date Last Modified 12/01/2006 Report/Document/Book chapter

Policies and Tools for Hospital Palliative Care Programs: A Crosswalk of National Quality Forum Preferred Practices

Primary Author: The Center to Advance Palliative Care (CAPC)

This document provides a compilation of policies and tools to help palliative care programs meet the NQFs Preferred Practices. Page 59 contains a sample Spiritual Care Assessment form.

Date Last Modified 12/31/2007 Report/Document/Book chapter, On-the-job tool

Chapter 3: Spirituality in the Care of the Aging and Dying

Primary Author: Christina M. Puchalski, GWish: The George Washington Institute for Spirituality and Health

This chapter from the book "Pain Management at the End of Life" is available for download as a pdf from the Hospice Foundation of American for $2.50. In it Dr. Puchalski differentiates physical pain from spiritual suffering and discusses how the two oftentimes combine at the end of life.

Date Last Modified 12/31/2006 Report/Document/Book chapter

Spiritual and Cultural Aspects of Palliative Care and The Interdisciplinary Team

Primary Author: Yale School of Medicine

Case 2 of the Yale Interdisciplinary Palliative Care Educational Program is an interactive computer-based clinical case of a woman with metastatic breast cancer. The objectives are for students to:

- Understand the basic precepts and goals of Palliative Care.
- Recognize common misconceptions about opioids (pain medication).
- Identify the importance of addressing the spiritual and cultural needs of a patient with terminal illness and understand how to get these needs met.
- Understand the clinical features of imminent death and how to help the patient and family during this time.
- Recognize the contributions of all health care professionals and understand the importance of the interdisciplinary team in the care of the patient with terminal illness.

Students are asked to reflect on aspects of the case.

Note: The module is accessible to anyone, but you will need to respond to five brief demographic questions.

Date Last Modified 12/31/2008 Tutorial, Case example/study, Standardized Patient Case

A Lion in the House SuperSibs Clips

Primary Author: SuperSibs and A Lion in the House

The Sibling Stories video clips and curriculum are free online through SuperSibs! http://www.supersibs.org

With major support from the Centers for Disease Control and Prevention, the Lance Armstrong Foundation, and SuperSibs! - filmmakers, Steven Bognar and Julia have responded to the interest from health care providers and educators to have shorter clips available for classroom and in-service education, awareness and trainings to promote greater understanding of the challenges facing pediatric patients, their siblings and their families.

Each targeted educational module comes with unique learning objectives, discussion questions and take-home points. The modules have been designed with input from a team of top experts in their respective fields, who looked at draft after draft to help us refine and improve them. They are for many audiences - medical and nursing students, residents, fellows, nurses, social workers, child life specialists, teachers, spiritual leaders, organization directors and program managers and others.

Date Last Modified 05/03/2010 Video, Course curriculum