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End of life care Resources

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Handbook for Mortals

Primary Author: Joanne Lynn, Center to Improve Care of the Dying

The complete text to the Handbook for Mortals: Guidance for People Facing Serious Illness, an authoritative consumer guide to end-of-life care. This book includes chapters on Finding Meaning, Talking with your Doctor, Advance Care Planning, and Enduring Grief and Loss.

Date Last Modified 12/31/2006 Report/Document/Book chapter, Website

A National Framework and Preferred Practices for Palliative and Hospice Care Quality

Primary Author: The National Quality Forum

This report details a framework for palliative and hospice care, intended to serve as a foundation for a quality measurement and reporting system. The report also discusses a set of preferred practices to improve palliative and hospice care.

Spiritual, Religious, and Existential Aspects of Care comprise the 5th domain of palliative and hospice care in this report.

The Executive Summary is available for free download from the page. The full report is free to NQF members and costs $29.99 for non-members.

Date Last Modified 12/01/2006 Report/Document/Book chapter

Preferred Practices from the National Quality Forum (NQF) Consensus Report

Primary Author: The Center to Advance Palliative Care (CAPC)

A 3-page document listing all of the preferred practices from the National Quality Forum (NQF) Consensus Report: Preferred Practices for Palliative and Hospice Care Quality. The Center to Advance Palliative Care created and distributed this document courtesy of the National Consensus Project. Spiritual assessment and spiritual care services are included in the preferred practices.

Date Last Modified 12/01/2006 Report/Document/Book chapter

Providing spiritual care to the terminally ill older adult: Complete Summary

Primary Author: National Guideline Clearinghouse (NGC)

Summary by the National Guideline Clearinghouse of the practice guideline produced by the University of Iowa Gerontological Nursing Interventions Research Center. The summary provides grades for the strength of the evidence used to produce the recommendations.

Date Last Modified 12/01/2006 Clinical practice guidelines

A Time for Listening and Caring Spirituality and the Care of the Chronically Ill and Dying

Primary Author: Christina M. Puchalski, GWish: The George Washington Institute for Spirituality and Health

A thoughtful, informative, and practical guide for anyone involved in caring for the seriously and chronically ill or dying. This book covers how spiritual care can be integrated into traditional caregiving. Part one discusses aspects of spirituality, such as presence, ethics, and relationships. Part two delves into a number of specific religious and theological traditions. Part three offers practical applications and tools, including storytelling, psychotherapy, dance, music, and the arts. Part four focuses on patients' stories and reflections.

Date Last Modified 06/01/2006 Book