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End of life care Resources

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ChiPPS Pediatric Palliative Care Newsletter Issue #11: Spirituality and Pediatric Palliative Care

Primary Author: National Hospice & Palliative Care Organization (NHPCO)

This issue of the Children's Project on Palliative/Hospice Services (ChiPPS) Pediatric Palliative Care Newsletter focuses on Spirituality and Pediatric Palliative Care.

Articles include:

- Faith & Family: Religious Rituals when a Baby or Child is Dying by Ann Fitzsimons
- The Spirituality of Compassionate Presence by Mark Power, BCC
- Faith Communities: A Hand of Mercy by Randy Johnson, M.Div.
- Assessing Cultural and Religious Diversity in Pediatric Palliative Care by Rev. Paula J. Teague, D.Min., BCC, ACPE, CPE Supervisor

Date Last Modified 05/01/2008 Report/Document/Book chapter, Article

Health Care Guideline: Palliative Care

Primary Author: ICSI: Institute for Clinical Systems Improvement

Guideline to "assist primary and specialty care providers in identifying and caring for adult patients with a potentially life-limiting, life-threatening or chronic, progressive illness who may benefit from palliative care." Includes guidelines for the spiritual, religious and existential aspects of care.

Date Last Modified 05/01/2008 Clinical practice guidelines

End of Life: Helping With Comfort and Care

Primary Author: National Institute on Aging

This booklet "provides an overview of issues commonly facing people caring for someone nearing the end of life. It can help you work with health care providers to complement their medical and caregiving efforts."

Date Last Modified 02/14/2008 Report/Document/Book chapter

ChiPPS Pediatric Palliative Care Newsletter Issue #10: Spirituality and Pediatric Palliative Care

Primary Author: National Hospice & Palliative Care Organization (NHPCO)

This issue of the Children's Project on Palliative/Hospice Services (ChiPPS) Pediatric Palliative Care Newsletter focuses on Spirituality and Pediatric Palliative Care.

Articles include:

- Struggles with God by Lisa Buell
- The Importance of Meaning-Making: Where Spirituality and Grief Intersect by Elizabeth A. Keene Reder, MA, CT
- Spiritual Care of Children with Life-Limiting Illness by Paul Thayer, DMin
- When a Child Dies: Spiritual Struggles and Solace by Beth Seyda

Date Last Modified 02/01/2008 Report/Document/Book chapter, Article

Being One with Dying: Showing Up for the Great Matter

Primary Author: Joan Halifax Roshi, Upaya Zen Center

This is the afterward from Joan Halifax Roshi's book, "Being with Dying: Cultivating Compassion and Fearlessness in the Presence of Death".

Date Last Modified 01/01/2008 Essay