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Palliative care Resources

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The Unbroken Circle: A Toolkit for Congregations Around Illness, End of Life, and Grief Primary Author: James L Brooks, Duke University The Unbroken Circle: A Toolkit for Congregations Around Illness, End of Life, and Grief is a new resource filled with practical tools and guidance to help congregations care for people facing illness, dying and bereavement. Developed by the Duke Institute on Care at the End of Life and written by Rev. James L. Brooks, it provides clergy, lay leaders, parish nurses and chaplains with an inspiring vision, easy-to-use tools, specific tips, and hundreds of additional resources. The Toolkit starts with a call to action and provides templates for congregations to plan a discussion of these issues. It also includes guidelines for support groups, information on how to offer spiritual support to families, and outlines for educational programs and liturgical services. The Toolkit is designed to be in sync with the self-organization of congregations, including organizing illness, death, and grief information specifically geared towards adult and child education, congregational care, and worship, facility, and clergy leadership. Published in the summer of 2009, The Unbroken Circle has been embraced by congregationally-based clergy and nurses, chaplains in health care settings, educators in seminaries and clinical pastoral education programs, and students interested in spiritual dimensions of caring for those with advanced illness. Date Last Modified 03/31/2009 Manual/guide, Book, On-the-job tool

A National Framework and Preferred Practices for Palliative and Hospice Care Quality Primary Author: The National Quality Forum This report details a framework for palliative and hospice care, intended to serve as a foundation for a quality measurement and reporting system. The report also discusses a set of preferred practices to improve palliative and hospice care. Spiritual, Religious, and Existential Aspects of Care comprise the 5th domain of palliative and hospice care in this report. The Executive Summary is available for free download from the page. The full report is free to NQF members and costs $29.99 for non-members. Date Last Modified 12/01/2006 Report/Document/Book chapter

Preferred Practices from the National Quality Forum (NQF) Consensus Report Primary Author: The Center to Advance Palliative Care (CAPC) A 3-page document listing all of the preferred practices from the National Quality Forum (NQF) Consensus Report: Preferred Practices for Palliative and Hospice Care Quality. The Center to Advance Palliative Care created and distributed this document courtesy of the National Consensus Project. Spiritual assessment and spiritual care services are included in the preferred practices. Date Last Modified 12/01/2006 Report/Document/Book chapter

Policies and Tools for Hospital Palliative Care Programs: A Crosswalk of National Quality Forum Preferred Practices Primary Author: The Center to Advance Palliative Care (CAPC) This document provides a compilation of policies and tools to help palliative care programs meet the NQFs Preferred Practices. Page 59 contains a sample Spiritual Care Assessment form. Date Last Modified 12/31/2007 Report/Document/Book chapter, On-the-job tool

ChiPPS Pediatric Palliative Care Newsletter Issue #10: Spirituality and Pediatric Palliative Care Primary Author: National Hospice & Palliative Care Organization (NHPCO) This issue of the Children's Project on Palliative/Hospice Services (ChiPPS) Pediatric Palliative Care Newsletter focuses on Spirituality and Pediatric Palliative Care. Articles include: - Struggles with God by Lisa Buell - The Importance of Meaning-Making: Where Spirituality and Grief Intersect by Elizabeth A. Keene Reder, MA, CT - Spiritual Care of Children with Life-Limiting Illness by Paul Thayer, DMin - When a Child Dies: Spiritual Struggles and Solace by Beth Seyda Date Last Modified 02/01/2008 Report/Document/Book chapter, Article