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Palliative care Resources

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The Essential Elements of Spirituality in the End-of-Life Care

Primary Author: Katrina M. Scott, MDiv, BCC, Massachusetts General Hospital

The National Consensus Projects Clinical Practice Guidelines for Quality Palliative Care, published in 2004, defines eight domains of care essential to palliative care clinical practice. The National Quality Forums 2006 document, A National Framework and Preferred Practices for Palliative and Hospice Care Quality: A Consensus Report, which is based on the Guidelines, identifies 38 evidence-based preferred practices for palliative care. This article demonstrates how the Guidelines and Preferred Practices may be operationalized in practice, focusing specifically on Domain 5 of the Guidelines, Spiritual, Religious and Existential Aspects of Care, which incorporates many pertinent aspects of hospice and palliative care related to addressing the spiritual needs of the dying patient and his or her family. In particular, the article addresses methods for assessing the need for spiritual care; methods for communicating with the patient and family about the need for spiritual care; the role of the spiritual adviser on the interdisciplinary palliative care team; the advantages of including certified chaplains on the palliative team; the need for sensitivity toward culture and religious diversity in administering spiritual care; the need for specialized palliative care spiritual advisors to build relationships with community clergy; and more.

Date Last Modified 09/01/2008 Article, Clinical practice guidelines

An Exploratory Study of Spiritual Care at the End of Life

Primary Author: Timothy P. Daaleman, University of North Carolina at Chapel Hill

Article from the Annals of Family Medicine describing a qualitative research study into how spiritual care is perceived and delivered at the end of life. The authors concluded that "Clinicians and other health care workers consider spiritual care at the end of life as a series of highly fluid interpersonal processes ... rather than a set of prescribed and proscribed roles".

Date Last Modified 09/01/2008 Article

ChiPPS Pediatric Palliative Care Newsletter Issue #11: Spirituality and Pediatric Palliative Care

Primary Author: National Hospice & Palliative Care Organization (NHPCO)

This issue of the Children's Project on Palliative/Hospice Services (ChiPPS) Pediatric Palliative Care Newsletter focuses on Spirituality and Pediatric Palliative Care.

Articles include:

- Faith & Family: Religious Rituals when a Baby or Child is Dying by Ann Fitzsimons
- The Spirituality of Compassionate Presence by Mark Power, BCC
- Faith Communities: A Hand of Mercy by Randy Johnson, M.Div.
- Assessing Cultural and Religious Diversity in Pediatric Palliative Care by Rev. Paula J. Teague, D.Min., BCC, ACPE, CPE Supervisor

Date Last Modified 05/01/2008 Report/Document/Book chapter, Article

Health Care Guideline: Palliative Care

Primary Author: ICSI: Institute for Clinical Systems Improvement

Guideline to "assist primary and specialty care providers in identifying and caring for adult patients with a potentially life-limiting, life-threatening or chronic, progressive illness who may benefit from palliative care." Includes guidelines for the spiritual, religious and existential aspects of care.

Date Last Modified 05/01/2008 Clinical practice guidelines

ChiPPS Pediatric Palliative Care Newsletter Issue #10: Spirituality and Pediatric Palliative Care

Primary Author: National Hospice & Palliative Care Organization (NHPCO)

This issue of the Children's Project on Palliative/Hospice Services (ChiPPS) Pediatric Palliative Care Newsletter focuses on Spirituality and Pediatric Palliative Care.

Articles include:

- Struggles with God by Lisa Buell
- The Importance of Meaning-Making: Where Spirituality and Grief Intersect by Elizabeth A. Keene Reder, MA, CT
- Spiritual Care of Children with Life-Limiting Illness by Paul Thayer, DMin
- When a Child Dies: Spiritual Struggles and Solace by Beth Seyda

Date Last Modified 02/01/2008 Report/Document/Book chapter, Article